This is where fear and panic began.
I was walking down an isle at Walmart and I really can't remember what is was looking at when I notice Ollie was shaking. For a second I thought maybe he was cold but then realized he was more twitching uncontrollably. He was having a seizure. I whipped out my phone to record the episode in case it ended before we saw a doctor so they could actually see with their eyes what I was talking about. I then tried to get him to focus on me and see if he would calm with a gentle cuddle but he wouldn't. I dialed the pediatrician and explained what was going on and they said to run to the ER NOW! (Just like that) I stuffed the kids in the car and through tears called my husband and told him that we were going to ER. I then called my mom and through tears and babbles told her she needed to calm me down and help me make it to the ER safely. I have never felt more panicked in my life and knowing that Ollie needed help now did not help me stay calm....mommies always help. She did the best she could to keep me talking and help me focus on where I needed to go. After 10 minutes I hung up and started to pray the rest of the way to the hospital. Ollie was at this point still seizing and crying in pain. Gabe just wanted fruit gummies. I pull up the hospital FINALLy and go to valet instead of looking for a parking spot in the parking deck....the valet was not there....I waited for several minutes and still no valet.....I should have left the car but when a mommy is in panic mode she tends to be rather stupid. I got back in the car and drove to the parking deck. After I had parked I grabbed Gabe and Ollie and carried them both (I am superwoman apparently) into the ER. Had to go through security (which there isn't any at the main entrance which is kinda weird) and got to the nurse finally. She asked what was going on and I told her I think my son is having a seizure. She asked if I had dropped him and I just looked at her all funny, telling her he has congenital CMV (which no nurse really understands) and put Ollie on her desk and told her to look at him
She grabbed a nurse and they ran to a back room where they immediately started to strip him down and put an IV in and put him on the monitor. This is the worst part of it.
All we could do was sit in a chair on the side and wait and watch. Within 2 minutes (nurse called emergency team in NOW!) we had 20 people surrounding him on the bed. There's were two doctors asking me questions about his medical history, weight, who are his doctors (we have four specialists now) and how long this had been going on. Finally after yelling Ollie's weight at them three times they gave him meds to calm the seizures down. He had an IV in and slowly people started to trickle out.....at this point he had been seizing for an hour.
After things settled the physicians we're asking me what the seizure looked like in e beginning. I then took out my phone and showed them what he was doing. It became a very famous video among the physicians (I guess people don't stop and film it usually and I don't like reenacting) they kept asking to watch it over and over again.
The medication he was given made him so loopy and tired that he was like a rag doll. He had no control over any part of his body and he kept yelling and making a strange noise. I was terrified, trying not to cry and trying to be as calm and cool as I could....I felt like a giant mess. We eventually had a CT and 5 hours later we were moved upstairs and put on a monitor and hooked up the his EEG machine. He started to come our of his loopy stage and act more himself. The biggest relief was being able to finally nurse him and cuddle him and help him feel my arms around him.
As he started to wake up more he started to act like he was in pain and uncomfortable. I was able to get the nurse to give him Tylenol and let him be swaddled. Now he is sleeping hard and only waking when he is uncomfortable.
I am grateful that we made it here safely and that I was able to get him the care he needed. I am still living with my heart in my throat and emotionally unstable from this scare. I know that this can come with Congenital CMV but I never knew what I would do if it actually happened. I wish I could express how much I love my babies and how terrified this made me. We are so lucky to have such supportive friends and family around and that he is here with us today. I worry that this is only the beginning and more scares could be on the way and I wonder if I can physically and emotionally handle it. This is a very big challenge and I am afraid for my child. I love you Oliver and I will forever protect your and love you.
